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#1 Symptom of MS Multiple Sclerosis - Fatigue - Top Symptoms of M.S.

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here is my number one symptom of MS that I have.

Fatigue.

It is ever present in my life. Like starting the day with only 20% battery in your phone. To las the whole day, you need to be frugal with how you use it.

It's not just being tired, it's being depleted at the start of the day.

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50 Comments

    Popular Comments:

You little rippa . 2018-10-10
I love you. You make me laugh. Thank you ❀
121 2 . Reply
Hayley Morgan . 2018-09-01
I have fibromyalgia and I say the suckiest part of it out of all the other symptoms is the chronic fatigue, πŸ˜ͺ I spend most of my days in bed because I have no energy to do anything, I just want my life back! I want to be the person who went to the gym 5 days a week, who walked everywhere, who ran a business, who was able to take the dogs out on long walks spend time with my daughter. now I can barely walk for five mins without being totally exhausted.
121 2 . Reply
Mrs Phillips . 2018-08-28
This puts my life into words so well.
121 2 . Reply
starquant . 2018-08-04
Fatigue = Do I get out of bed and have a shower?. Fatigue= Do I get out of bed and go for a drive (as a passenger) in a car once a week to get groceries and drag myself around the Supermarket?. (I choose the drive in the car, which is why I stink to kingdom come). (I'm like Queen Victoria: I shower once a month whether I need it or not.. more like 3 tbh, but have gone as long as 6). Fatigue: I can't be bothered to eat: to dress: to contact friends or family: Fatigue: To brush my hair, my teeth: Fatigue: To even have a decent conversation because it all sounds disingenuous and I'm never on track. Fatigue: I started out with good intentions and my brain still works... what did I just say?. Fatigue: I got out of Bed, now LEAVE ME ALONE!.
It's impossible to describe ongoing and chronic fatigue to those who have never had it. Thank you so much for TRYING !. I haven't lost interest in the world, it simply lost interest in me. These are great posts and I appreciate them very much.
121 2 . Reply
Rodney Power . 2018-07-12
You are a good spokesman for the MS community world wide .... please continue your work ... much love !!
121 2 . Reply
Awaken dabeast . 2018-07-08
Thanks for your videos...ive recently come down with many symptoms that make me think i may have a serious condition...occipltal neuralgia...bowel problems...hint of swallowing and now some type of insomnia...
121 2 . Reply
hippydoom . 2018-06-20
I am like this. I have fibromyalgia but I feel its something more. I get so depressed from not being able to follow through and when I do things take me a very long time to do. I have to take breaks from the simplest tasks.
121 2 . Reply
Erica Anglin . 2018-05-23
I was diagnosed by my PCP a year ago. I'm going today for a spinal tap because my neurologist want to be sure it's MS before starting meds. I started having what I call "spaghetti legs" about 3 months ago. Pain in the ass to walk and I have to stand/walk for a 10 hour shift. Looks/feels like I'm drunk after the first 2 hours
121 2 . Reply
Mini Warzone . 2018-05-18
I hate having a long night's sleep then waking up knackered and feeling like I need to sleep again
121 2 . Reply
The DmaCk . 2018-04-30
I love when you used the term "Muggle". Have a great day.
121 2 . Reply
GlitterFartsss . 2018-04-26
I want a shirt that say "blah de bloody science stuff"
121 2 . Reply
MARION MOODY . 2018-02-09
Very well explained Andy.πŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌIt's frustrating when people think you look and seem OK ,and really your not! I can see why people conclude to this asthey only see us when we're using some of the 20% battery life.Its something you don't feel like explaining .love your videos Andy.
121 2 . Reply
shilo day . 2018-02-07
I absolutely have the fatigue. It's awful. I spend 4 hours getting ready and then I am so tired, I have to lay down awhile so I have enough energy to make dinner. Anything big that comes up, kills my energy and then it's take out pizza night. No use fighting it.
121 2 . Reply
Zombie Brainz . 2018-02-05
Starting the day with 20% and no charger is a really good analogy.
121 2 . Reply
Melody Kubiak . 2018-02-05
I've had fibromyalgia since 1974. Fatigue is one of the symptoms, so my energy is limited. I quit working outside the home in 2002 because I just couldn't do it anymore. I started having muscle weakness that affects walking/standing in 2008. It's RRMS, so it comes and goes. When I "only" have to deal with the fibromyalgia it is so much easier. I find that when I've recovered from a relapse I have to dither about whether to go for a walk to build up my strength or if that would take away from the energy I need to do the housework. This past Christmas is the only one in the last few years that I didn't have a relapse going on--I'm so thankful for that! So I know what you mean about wrapping presents. One year I couldn't help to decorate the tree. That was during my worst relapse ever, lasting 7 months. We didn't have a tree two years ago because we had just adopted a 10-year old Senegal parrot and we were worried about having the tree around him before we leaned how he behaves so I don't know if I could have helped with the tree or not during that relapse. So, anyway, I am limited by how much I can do because of fibromyalgia-related fatigue and doubly so when the MS kicks in. I try to plan something to accomplish each day. I divide the rooms into tasks so that if I accomplish the one task I can feel good about that and not feel bad about the rest of the room not being done. I had a real light bulb moment when I realized that cleaning five bird cages is not one job, but five! They don't all need to be done on the same day. That's how I cope with fatigue. If I push myself and do too much I spend the next 2-3 days recovering from it, so I'd rather divide up a big project and do it over three days and not suffer for it. I try to look at the positives, what I have accomplished, rather that what is left. If I did that I'd feel like a failure every day. I figure that I can choose to be happy or miserable, so I choose to be happy while living with chronic illness. Having one chronic illness actually helped me to adapt to living with two.
121 2 . Reply
AS Chambers . 2018-02-04
Very well put.
121 2 . Reply